A Week at EmpowHER Camp

I’ve previously written about how we launched Disability EmpowHer Network last year. Disability EmpowHer Network is an organization dedicated to empowering girls and women with disabilities to live to their fullest potential and have the confidence to lead. Our first big program is EmpowHer Camp. This is a multi-stage skill-building, empowerment, and mentoring program thatContinue reading “A Week at EmpowHER Camp”

Let’s Celebrate Spinal Cord Injury Awareness

September is Spinal Cord Injury Awareness Month.  Back in 1981, I didn’t truly understand in specific terms what my spinal cord really was. I soon learned. Understanding the Mental Impact of SCI As I laid in a hospital bed wondering why I couldn’t feel my legs, I knew that I had been in an accident.Continue reading “Let’s Celebrate Spinal Cord Injury Awareness”

Chrysanthemum Chan: Sew Much Cosplay, Sew Little Time

She’s breaking barriers, one stitch at a time! Chrysanthemum Chan is a self-taught seamstress and designer with a special focus in cosplay, designing costumes to represent specific characters. She also specializes in kawaii, a Japanese fashion movement. With a TikTok channel of over 380,000 followers, Chrysanthemum brings awareness to her disability and the ableism thatContinue reading “Chrysanthemum Chan: Sew Much Cosplay, Sew Little Time”

Feeling Slim in My Stretto Motorized Wheelchair

I have been using Pride and Quantum wheelchairs since I was 11. My very first power wheelchair was a Jazzy 1122. I can tell you that that wheelchair was an actual beast. It had a LOT of life in it. I got it when I was 11, but I was still using it in college.Continue reading “Feeling Slim in My Stretto Motorized Wheelchair”

Fighting the Stigma of Power Wheelchairs

Kids love machines. We recently got a new gadget that infuses still water with carbonation to cut down on our family’s consumption of single-use sparkling water bottles and cans. Observing this device in action was a major event when we hosted one of my kids’ playmates for dinner recently.  As exciting as a seltzer makerContinue reading “Fighting the Stigma of Power Wheelchairs”

Building an Accessible Playground

In January of 2020, I participated in a news interview about playground accessibility. A young girl in the Rochester area named Santii was selling hot cocoa for $1 per cup in order to raise money for an accessible swing. Santii wanted to do this because when she was playing on a playground, she noticed anotherContinue reading “Building an Accessible Playground”

Things People Say to Me and My Husband

My husband and I have been together for over three years. We’ve been married for about seven months. We have a home together, some cats and dogs, stable jobs and disagree about at what temperature the thermostat should be set. All in all, I’d say we’re a pretty average couple. Despite how boringly average weContinue reading “Things People Say to Me and My Husband”

National Women’s Checkup Day

Every year, the second Monday of May is National Women’s Checkup Day and it is part of National Women’s Health Week. National Women’s Health Week starts on Mother’s Day every year and is a weeklong health observance to remind women and girls to make their health a priority and take care of themselves. It isContinue reading “National Women’s Checkup Day”

Finding the Right Nurse or Caregiver

Living with a disability comes with many challenges. One of those challenges is finding a capable caregiver. My condition doesn’t allow me to do anything for myself, which is why I need a nurse. My doctors recommend that a nurse helps me for 16 hours a day. Why I Need a Nurse I need aContinue reading “Finding the Right Nurse or Caregiver”

Friends as Caregivers

While disability comes in all shapes, sizes and diagnoses, caregiving options are more limited. Most people with disabilities will fall into one or more care categories at any given time: independent, receiving care from a family member, friend, significant other or agency. The most complex of these relationships is that of a significant other andContinue reading “Friends as Caregivers”