As March continues, I reflect on my work with the Muscular Dystrophy Association (MDA) and its Shamrock campaign, which started in the 1980s. Thousands of participating retailers will sell MDA Shamrocks to customers for a donation, ranging from one to five dollars. I was the national goodwill ambassador for the MDA in 2012 and 2013Continue reading “My Quantum Power Wheelchair and the MDA Shamrocks Campaign”
Tag Archives: Advocate
Why It’s Important to Advocate for Yourself as a Patient
I’ve ended up in the hospital three times this month. My experience demonstrates the importance of advocating for yourself when you know something is not right, no matter what doctors and medical staff say. The First Hospital Visit It all started in October. I went into the hospital because my suprapubic catheter was not drainingContinue reading “Why It’s Important to Advocate for Yourself as a Patient”
Tips for Parents When Your Child Needs a New Wheelchair
I recently went to the doctor to get a prescription for a new manual wheelchair, and I realized how much I have learned since I got my first one when I was 5 years old. For ambulatory wheelchair users, the process can be especially confusing, so I wanted to share some tips for parents whoContinue reading “Tips for Parents When Your Child Needs a New Wheelchair”
How to be Your Own Self Advocate
I am an employment specialist who supports people with disabilities. The number one skill I work on with consumers is self advocacy. Self advocacy is speaking up for yourself. It means having the ability and information to get what you want or need to be successful. It’s understanding what rights you have, who can assistContinue reading “How to be Your Own Self Advocate”