Discovering New Ways to Live with Charcot-Marie Tooth Disease

Charcot-Marie Tooth (CMT) is a neuro-muscular disease that can impact everyone differently. There are a few variations of a CMT diagnosis, but I have never been given a specific diagnosis. The diagnosis test generally involves a form of electrical nerve stimulation which is very painful, so I just avoid it. I never needed testing becauseContinue reading “Discovering New Ways to Live with Charcot-Marie Tooth Disease”

Occupy Your Mind: Great Indoor Hobbies for Wheelchair Users

I feel it’s important to have hobbies and interests, find new ways to occupy your brain with stuff. Hobbies or sports that get you thinking or moving are great options. For me, I like to play video games, watch TV and movies. It’s how I learned to act! Watching TV and movies was great researchContinue reading “Occupy Your Mind: Great Indoor Hobbies for Wheelchair Users”

Healthy Eating When You Have a Disability

If you live in the northeast, from December until March, it is very cold. Normally, my goal is to stay warm. I don’t really go outside the house much if I’m not snow birding in Florida. If I am up north at my parents’ house in New York, I make a pact with myself toContinue reading “Healthy Eating When You Have a Disability”

How to Talk to Your Kids About Disability

After my diagnosis, family and friends often asked me when I will have a conversation with my children about my disability. I realized there was no perfect timing. I tried to figure out how to make such a complex subject easy for a kid to understand.  At the onset of my disability, I decided toContinue reading “How to Talk to Your Kids About Disability”

How I Learned to Eat Better with the Mediterranean Diet

One of my new year’s resolutions is to eat a Mediterranean meal for dinner 275 times this year. I know that 275 sounds pretty weird, but that’s about 75 percent of the time, which I think I can do. Anytime I try to go 100 percent on any sort of lifestyle change, I end upContinue reading “How I Learned to Eat Better with the Mediterranean Diet”

The Benefits of Technology When Transferring to a Medical Exam Table

Many of us who use wheelchairs find it very difficult to transfer in a medical setting, such as transferring to an exam table or MRI table. Quite often, these medical tables or equipment are too high for transferring from a manual or power wheelchair. This is where iLevel® technology comes in handy. How iLevel AidsContinue reading “The Benefits of Technology When Transferring to a Medical Exam Table”

How I Found My Confidence as a Disabled Person

Learning to accept and love your disability is a journey every person with disability goes through. The journey they take differs from person to person. Even the concept of accepting one’s disability varies, based on who you ask. To me, disability acceptance means embracing your disability and seeing your disability not as the problem butContinue reading “How I Found My Confidence as a Disabled Person”

Qualifying Diagnoses and Kids Wheelchairs

If your child was recently diagnosed with a condition that affects their mobility, complex rehab equipment may help them live independently. Serious medical conditions, such as Friedreich’s ataxia, spinal muscular atrophy and osteogenesis imperfecta, can require specialized equipment to provide mobility and meet functional and medical needs. A kids wheelchair, such as the Edge 3Continue reading “Qualifying Diagnoses and Kids Wheelchairs”

Finding the Right Nurse or Caregiver

Living with a disability comes with many challenges. One of those challenges is finding a capable caregiver. My condition doesn’t allow me to do anything for myself, which is why I need a nurse. My doctors recommend that a nurse helps me for 16 hours a day. Why I Need a Nurse I need aContinue reading “Finding the Right Nurse or Caregiver”

Qualifying Diagnoses and Narrow Motorized Wheelchairs

If you were recently diagnosed with a medical condition that affects your mobility, you may qualify for complex rehab equipment. More serious medical conditions, such as ALS, muscular dystrophy and other diagnoses, may require specialized equipment designed to meet functional and medical needs. A narrow motorized wheelchair, such as the Edge 3 Stretto®, can acceptContinue reading “Qualifying Diagnoses and Narrow Motorized Wheelchairs”