My Quantum Power Wheelchair Allows Me to Enjoy Life

I started using a manual wheelchair in 2012, after a fall from spine surgery took away the mobility in my legs. I have a connective tissue disorder that’s caused me to need multiple surgeries on my brain and spine. From previous surgery complications, I already had quadriparesis (weakness of all my limbs.). The rehab centerContinue reading “My Quantum Power Wheelchair Allows Me to Enjoy Life”

Living Life with a Spinal Cord Injury

This September, let’s celebrate National Spinal Cord Injury Awareness Month! A spinal cord injury (SCI) is a life altering condition that significantly impacts individuals and families. With an SCI, a patient sustains damage to the spinal cord that results in a loss of function, movement and/or feeling. There are two types of spinal cord injuries:Continue reading “Living Life with a Spinal Cord Injury”

Wheelchair Users Need Access to Seat Elevation Like iLevel

One of the tenants that I live by is a quote by Maya Angelou: “Know better, do better.” I’ve never understood why we hold so tight to our beliefs and outdated ways of doing something when we learn more and have access to new advancements, like technology. With the advancement of wheelchairs, like the widespreadContinue reading “Wheelchair Users Need Access to Seat Elevation Like iLevel”

People with Disabilities Are Under-Represented in Clinical Trials

Since January 2020, American scientists have worked day and night to understand the virus we know as COVID-19. Now, health agencies across the globe have granted emergency authorization for the use of thirty-four vaccines (collectively). Yet, our healthcare system is still in shambles. We are two and a half years into the COVID-19 pandemic. SomeContinue reading “People with Disabilities Are Under-Represented in Clinical Trials”

Top Issues Facing People with Disabilities and Personal Care Attendants

Like many people with disabilities, I rely on the support of personal care attendants to complete activities of daily living. These supports are vital for us to live our day-to-day lives, however, working as a personal care attendant is not an easy job. Personal care attendants should be treated with more respect. Hiring Personal CareContinue reading “Top Issues Facing People with Disabilities and Personal Care Attendants”

The Great Benefits of My Wheelchair at Medical Appointments

Going to the doctor for annual healthcare checkups is a normal occurrence for most individuals. Making these appointments so that they don’t interfere with work or school schedules takes some thought. Once the appointment is booked, you just wait for the day to arrive. For someone with a physical disability who uses a wheelchair, however, thereContinue reading “The Great Benefits of My Wheelchair at Medical Appointments”

June is Arthrogryposis Multiplex Congenita (AMC) Month

I was born with Arthrogryposis Multiplex Congenita. It is a rare, non-progressive muscle disorder, characterized by multiple joint contractures at birth. It is an umbrella diagnosis. This means there are many types of Arthrogryposis. There are over 400 different types and some who are diagnosed never had their type identified. I am one of thoseContinue reading “June is Arthrogryposis Multiplex Congenita (AMC) Month”

The Other Side of the Hospital Room

Growing up, hospital rooms felt more like home to me than my actual home. It might sound wild to you, but I LOVED going in for surgery. I was the youngest of three kids. I shared a bedroom with my sister and we only had one TV in our house when I was little. So,Continue reading “The Other Side of the Hospital Room”

Discovering New Ways to Live with Charcot-Marie Tooth Disease

Charcot-Marie Tooth (CMT) is a neuro-muscular disease that can impact everyone differently. There are a few variations of a CMT diagnosis, but I have never been given a specific diagnosis. The diagnosis test generally involves a form of electrical nerve stimulation which is very painful, so I just avoid it. I never needed testing becauseContinue reading “Discovering New Ways to Live with Charcot-Marie Tooth Disease”

Occupy Your Mind: Great Indoor Hobbies for Wheelchair Users

I feel it’s important to have hobbies and interests, find new ways to occupy your brain with stuff. Hobbies or sports that get you thinking or moving are great options. For me, I like to play video games, watch TV and movies. It’s how I learned to act! Watching TV and movies was great researchContinue reading “Occupy Your Mind: Great Indoor Hobbies for Wheelchair Users”