As a singer and musician, Anomie Fatale is hitting all the right notes. She grew up in New Hope, Pennsylvania, and was diagnosed with Ehlers Danlos Syndrome, a genetic connective tissue disorder that typically exhibits itself later in life. She became disabled at age 20 due to complications from surgeries for Chiari malformation and a tethered spinal cord. Later, Anomie moved to Philadelphia to experience a more accessible and independent lifestyle. With the help of her Stretto Power Chair, she is thriving in her music and efforts to support her local community.
Comfort and Her Stretto Wheelchair
Because of her disability, comfort is extremely important to Anomie. The recline feature on her Stretto Power Wheelchair is essential to her ability to get out and about. No matter what terrain she faces on the streets of Philly, independent SRS on her Stretto ensures a smooth ride.
“The shock absorption is amazing,” Anomie said. “I can go at higher speeds and over bumps.”
Although Anomie is somewhat ambulatory without assistive technology, it is difficult for her to move from a sitting to a standing position without help from others. iLevel® technology on her power wheelchair allows her to elevate freely and without pain.
“In my home, it gives me the ability to do so much more independently and safely,” Anomie said.
Staying Active in Her Community
Anomie has overcome many challenges in her life, and music serves as an outlet for her. In 2016, she put out a solo album called “I AM Great Neck,” and continues to perform at shows and open mic nights around Philly. She has been featured on NPR Radio and in the Philadelphia Inquirer. Currently, Anomie is the titleholder for Ms. Wheelchair Pennsylvania USA 2022.
In addition to her music, Anomie is passionate about helping others and supporting her community. Recently, she wrote an op-ed piece for whyy.org on disability pride, and how the disability community has persevered in the wake of COVID-19. Anomie explained that this year’s disability pride was not only a celebration of disability identities, but a celebration of life and survival.
“Many of my friends are wheelchair users; we have a very strong community here in Philly with lots of accessible events,” Anomie said. “I’m proud to be a part of that.”
